Patient Resources

Resources

Congenital Disorders of Glycosylation

Cerecor CDG Expanded Access Program CDG Care Patient Advocacy Group NORD National Organization for Rare Diseases SIMD Society for Inherited Metabolic Disorders

Mitochondrial Depletion Syndrome

CDC Centers for Disease Control and Prevention NORD National Organization for Rare Diseases

Crohn’s Disease

Crohn’s and Colitis Foundation

Adult Onset Stills Disease

Adult Onset Still's Disease Arthritis Foundation

Multiple Myeloma

The American Cancer Society International Myeloma Foundation

Lymphatic Malformations

NORD National Organization for Rare Diseases Nemours

Patient Advocacy Groups

CDG Care Patient Advocacy Group Crohn’s and Colitis Foundation Arthritis Foundation International Myeloma Foundation The American Cancer Society The Michael J. Fox Foundation for Parkinson’s Research The MSA Coalition NOHMATTERS